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Title: One Mother’s Journey to Save Her Son
Description: Christina Herrin, government relations manager of health policy, interviews Amber Freed, mother, activist, and founder of SLC6A1 Connect. The prevalence of rare diseases in the U.S. is growing. Nearly 1 out of 10 Americans suffer from a rare disease. For the Freed family and Maxwell her son, time is of the essence to find a cure for SLC6A1. The discussion focuses on rare diseases, finding a cure, and obstacles to bringing new cures to market. LinkedIn o Hashtags/References: @Amber Freed, #SLC6A1, #SLC6A1Connect, #GeneTherapy, #FightLikeAMother, #RareDisease Donate here: slc6a1connect.org/donate-here/ Video of our story: www.youtube.com/watch?v=xbNXxMJ4x…&feature=youtu.be Facebook o Follow & Tag: SLC6A1 Connect Donate here: slc6a1connect.org/donate-here/ Video of our story: www.youtube.com/watch?v=xbNXxMJ4x…&feature=youtu.be Instagram o Follow & Tag: Milestones_For_Maxwell o Hashtag: #SLC6A1 #SLC6A1Connect #Ellen Twitter o Follow & Tag: Maxs_Milestones
 

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