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One Mother’s Journey to Save Her Son (Guest: Amber Freed)

October 1, 2020

When here son was diagnosed with an uncurable rare disease, mother Amber Freed set out to accomplish the impossible. Listen to what she’s accomplished already.

Christina Herrin, government relations manager of health policy, interviews Amber Freed, mother, activist, and founder of SLC6A1 Connect. The prevalence of rare diseases in the U.S. is growing. Nearly 1 out of 10 Americans suffer from a rare disease. For the Freed family and Maxwell her son, time is of the essence to find a cure for SLC6A1. The discussion focuses on rare diseases, finding a cure, and obstacles to bringing new cures to market.

Social Media Handles:  LinkedIn:  SLC6A1 Connect, Amber Freed, Instagram:  Milestones_For_Maxwell, Facebook:  SLC6A1 Connect, Twitter:  Maxs_Milestones


o   Hashtags/References:  @Amber Freed, #SLC6A1, #SLC6A1Connect, #GeneTherapy, #FightLikeAMother, #RareDisease

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o   Follow & Tag:  SLC6A1 Connect

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o   Hashtag:  #SLC6A1 #SLC6A1Connect #Ellen


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Health Care
Christina Herrin is a former state government relations manager at The Heartland Institute. @_Free2Choose