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One Mother’s Journey to Save Her Son (Guest: Amber Freed)

October 1, 2020

When here son was diagnosed with an uncurable rare disease, mother Amber Freed set out to accomplish the impossible. Listen to what she’s accomplished already.

Christina Herrin, government relations manager of health policy, interviews Amber Freed, mother, activist, and founder of SLC6A1 Connect. The prevalence of rare diseases in the U.S. is growing. Nearly 1 out of 10 Americans suffer from a rare disease. For the Freed family and Maxwell her son, time is of the essence to find a cure for SLC6A1. The discussion focuses on rare diseases, finding a cure, and obstacles to bringing new cures to market.

Social Media Handles:  LinkedIn:  SLC6A1 Connect, Amber Freed, Instagram:  Milestones_For_Maxwell, Facebook:  SLC6A1 Connect, Twitter:  Maxs_Milestones

LinkedIn

o   Hashtags/References:  @Amber Freed, #SLC6A1, #SLC6A1Connect, #GeneTherapy, #FightLikeAMother, #RareDisease

Donate here:  https://slc6a1connect.org/donate-here/

Video of our story:  https://www.youtube.com/watch?v=xbNXxMJ4xW8&feature=youtu.be

Facebook

o   Follow & Tag:  SLC6A1 Connect

Donate here:  https://slc6a1connect.org/donate-here/

Video of our story:  https://www.youtube.com/watch?v=xbNXxMJ4xW8&feature=youtu.be

Instagram

o   Follow & Tag:  Milestones_For_Maxwell

o   Hashtag:  #SLC6A1 #SLC6A1Connect #Ellen

Twitter

o   Follow & Tag:   Maxs_Milestones

Article Tags
Health Care
Author
Christina Herrin is the Campaign Manager for Free to Choose Medicine.
cherrin@heartland.org @_Free2Choose